Many students at Red Lion High School look forward to attending Mini-THON each spring. As a chair of this year’s Mini-THON, it is encouraging to know that students are excited to participate in the games and activities of our event. As a Four Diamonds Child, however, Mini-THON holds a different meaning.
The summer after my fifth birthday, my parents noticed a significant decrease in my appetite and an increase in my thirst. My need to drink superseded all else.
Confused and worried, my parents took me to many doctors, but no one could understand the cause of my symptoms.
I went for seven months only drinking and not eating. At the age of five, I barely weighed 25 pounds.
Finally, I went to a feeding therapist. After meeting a few times, he didn’t feel I had an eating disorder and ordered an MRI of my brain. The MRI showed a mass in my brain, attached to my pituitary gland.
The damage the mass inflicted on this gland was caused by an uncommon disorder called Diabetes Insipidus or DI. This means that I am unable to control my water. I have to take medication several times a day to control it.
After I went to an oncologist, it was decided that I would need a brain biopsy. Through the biopsy, I learned that I have a rare cancer, Langerhans Cell Histiocytosis or LCH.